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Explore our latest articles, insights, and stories from the frontlines of clinical trials.

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All breast cancer trials fertility preservation orphan drug access gene therapy trials autoimmune flare management

How to Find Trials, Travel Aid & Access Options for Rare Diseases

A practical Q&A for patients and caregivers on Finding trials and travel help for rare diseases, compassionate use, pharmacogenomics, and pediatric schooling — with tech-forward tips and a concise checklist.

Robert Maxwell Oct 30, 2025

compassionate use Pre-Emptive Pharmacogenomics gene-editing trials pediatric orphan diseases

ClinConnect Expert: Registries, Access, Remote Trials & Orphan Aid

A focused analysis of how registries, expanded access, remote trials, and financial navigation are reshaping care options for cancer and rare-disease patients in 2024–2025.

Robert Maxwell Oct 22, 2025

enzyme replacement therapy Patient registries compassionate use lysosomal storage disorders