Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases
Launched by MEMORIAL SLOAN KETTERING CANCER CENTER · Jun 17, 2019
Trial Information
Current as of November 14, 2025
Recruiting
Keywords
ClinConnect Summary
This clinical trial is focused on understanding the supportive care needs of caregivers who help people with Erdheim-Chester disease and other related conditions. Caregivers are often family members or friends who provide unpaid support to patients. By learning more about what these caregivers need, the study aims to improve their experience and help them better support their loved ones.
To participate in this study, caregivers must be at least 18 years old, speak and understand English, and be willing to share their experiences. Participants will complete some assessments online, which will help researchers gather important information about their needs. This trial is currently recruiting, and all genders are welcome to join. If you are a caregiver looking to contribute to this important research, you may be eligible to participate!
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • Self-identified informal caregiver (family member or friend who provides unpaid support) for a patient with Erdheim-Chester Disease (or LCH, RDD, or JXG for the exploratory aim).
- • Proficiency to complete study assessments in English, evaluated at the time of consent.
- • Age 18 or over.
- Exclusion Criteria:
- • Participant unwilling to sign consent.
- • Participant unable to complete web-based assessments.
About Memorial Sloan Kettering Cancer Center
Memorial Sloan Kettering Cancer Center (MSKCC) is a world-renowned institution dedicated to cancer treatment, research, and education. As a leading clinical trial sponsor, MSKCC focuses on advancing innovative cancer therapies through rigorous scientific investigation and collaboration. The center's multidisciplinary team of experts employs cutting-edge methodologies to design and conduct trials that aim to improve patient outcomes and enhance understanding of cancer biology. With a commitment to translating research findings into clinical practice, MSKCC plays a pivotal role in shaping the future of oncology care and ensuring that patients have access to the latest therapeutic advancements.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
New York, New York, United States
New York, New York, United States
Patients applied
Trial Officials
Eli Diamond, MD
Principal Investigator
Memorial Sloan Kettering Cancer Center
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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