Modified Delphi for Genomic Bereavement Care

Launched by THE LEEDS TEACHING HOSPITALS NHS TRUST · Dec 16, 2022

Keywords

ClinConnect Summary

There is a lack of guidance available as to how to care for women and families who suffer a pregnancy loss where fetal anomalies have been found and a genetic cause is suspected. As it is estimated that 1 in 4 pregnancies end in loss, these families make up a significant proportion of the population that maternity services care for and with no consensus in this area many families may have a poor experience.

As the field of genomics rapidly advances, it is important that patient care reflects the changes in practice and that the most appropriate tests and support are offered. All aspects of...

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Participants must belong to one of the relevant stakeholder groups; Maternal and fetal medicine consultants or obstetricians with a special interest in fetal medicine, Clinical geneticists with an interest in prenatal genomics, Perinatal pathologists Clinical scientists with an interest in genomics, Bereavement midwives.
• Exclusion Criteria:
• • Nil if inclusion criteria are met

Trial Officials