A Registry for Patients With Systemic Mastocytosis in China
Launched by THE FIRST AFFILIATED HOSPITAL OF SOOCHOW UNIVERSITY · Aug 24, 2023
Trial Information
Current as of November 14, 2025
Recruiting
Keywords
ClinConnect Summary
The Registry for Patients With Systemic Mastocytosis in China is a study designed to gather important information about people living with systemic mastocytosis, a condition where too many mast cells are present in the body. This registry aims to collect details about patients' backgrounds, health, and experiences to better understand how this disease affects individuals in China. Participation is completely voluntary, and there are no new treatments being tested in this study.
If you or a loved one has been diagnosed with systemic mastocytosis as defined by the World Health Organization, you may be eligible to participate. There are no specific exclusions, so almost anyone with this diagnosis can join. Participants will be asked to provide some information online and will help contribute to a database that could improve understanding and care for others with this condition in the future. Your involvement can make a difference in the lives of many people affected by systemic mastocytosis.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • 1. Any patient with a diagnosis of systemic mastocytosis according to World Health Organization (WHO) classification, including subtypes of SM, who is willing and able to provide written online informed consent.
- Exclusion Criteria:
- • None
About The First Affiliated Hospital Of Soochow University
The First Affiliated Hospital of Soochow University is a leading medical institution dedicated to advancing healthcare through innovative research and clinical excellence. As a prominent clinical trial sponsor, the hospital leverages its extensive expertise in various medical disciplines to facilitate high-quality, ethically conducted studies that aim to enhance treatment options and improve patient outcomes. With a commitment to collaboration and scientific rigor, the institution plays a pivotal role in contributing to the global body of medical knowledge while ensuring the highest standards of patient care and safety.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Suzhou, Jiangsu, China
Patients applied
Trial Officials
Suning Chen, Professor
Principal Investigator
The First Affiliated Hospital of Soochow University, Jiangsu Institute of Hematology
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported