Hand Disability In Systemic Sclerosis - Digital Ulcers

Launched by PAMUKKALE UNIVERSITY · Oct 24, 2024

Keywords

ClinConnect Summary

This study is checking whether the Turkish version of a hand-disability questionnaire, called the Hand Disability in Systemic Sclerosis - Digital Ulcers (HDISS-DU), works well for people with systemic sclerosis who have digital ulcers. The researchers want to know if this tool is valid and reliable in Turkish, and they’ll compare it with two other measures of hand function and daily activities. About 72 adults with systemic sclerosis, treated at two Turkish universities (Pamukkale University in Denizli and Inonu University in Malatya), may be invited to participate. To join, you must be 18 or older, have a rheumatologist-diagnosed systemic sclerosis, be able to speak Turkish, and not have other conditions that would make testing unclear or difficult.

Participants will answer questionnaires about hand function and daily living. There is no experimental treatment involved—the study is observational and aims to validate the Turkish HDISS-DU. Evaluations are expected to be completed within about six months after ethics approval. If you join, your responses will help determine whether the Turkish HDISS-DU is a good, reliable tool for people with systemic sclerosis in Turkey. The study is led by Zülal TATAR at Pamukkale University.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Diagnosed with SSc by a rheumatologist
• • Being 18 years of age or older
• Exclusion Criteria:
• • Presence of neurological disease
• • Presence of any orthopedic problem that would affect functionality
• • Presence of a history of orthopedic surgery
• • Inability to speak or understand Turkish fluently
• • Presence of a psychiatric disease that would affect cooperation
• • Severe neurological disease that would affect hand functions (peripheral nerve lesion, trauma, operation, cerebrovascular accident)
• • Heart failure and lung pathology that would affect daily living activities