Natural History of Sickle Cell Disease

Launched by NATIONAL HEART, LUNG, AND BLOOD INSTITUTE (NHLBI) · Apr 14, 2004

Keywords

ClinConnect Summary

This clinical trial, titled "Natural History of Sickle Cell Disease," is focused on understanding the experiences of individuals with sickle cell disease, particularly related to pain crises. It is important to note that this study is not testing new treatments; instead, it aims to gather information that could help improve care for those living with this condition. Participants will receive their regular medical care outside of the study and may have multiple visits at our clinic, where they might undergo additional tests as needed.

To be eligible for this trial, individuals must be 2 years or older and have known or suspected sickle cell disease. They should also be willing to provide consent, or have a parent or guardian provide consent for younger participants. If you or someone you know is interested, they will be seen at our sickle cell outpatient clinics at participating centers. This study is currently recruiting participants of all genders, and it provides an opportunity to contribute to valuable research that could benefit the sickle cell community in the future.

Gender

ALL

Eligibility criteria

• * INCLUSION CRITERIA:
• • Individuals with known or suspected sickle cell disease
• • 2 years of age and older
• • Willing to provide informed consent or appropriate informed consent from parent or legal guardian
• • Patients seen at sickle outpatient clinics at any one of the participating centers (CNHS or NIH).
• EXCLUSION CRITERIA:
• • Patient and/or guardian unable and unwilling to give informed consent or assent.
• • Patients less than 2 years of age.