Database for Stroke in Infants and Children: the International Pediatric Stroke Study

Launched by THE HOSPITAL FOR SICK CHILDREN · Jun 9, 2004

Keywords

ClinConnect Summary

The International Pediatric Stroke Study (IPSS) is a research project aimed at understanding and improving outcomes for children who have experienced strokes or are at high risk for them. This study collects important information about these young patients, including their medical history and brain scans, to help doctors learn more about how strokes affect children and how to treat them better. The IPSS has been running since 2003 and involves over 100 hospitals worldwide, making it a significant effort to advance pediatric stroke research.

Children from birth up to 18 years old who have had a stroke or are at high risk for one may be eligible to participate. This includes those diagnosed with different types of strokes, such as Arterial Ischemic Stroke or Cerebral Sinovenous Thrombosis, as well as children with certain medical conditions that increase their risk of stroke. Participants will have their health records reviewed, and their brain images shared with researchers to help improve understanding of recovery processes in childhood stroke. This study is currently recruiting participants and aims to create a better future for children affected by strokes.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • This registry will include all children from birth to 18 years of age who are diagnosed with stroke or a condition/disease (as defined below) that put them at high risk of stroke after Jan 1,2003 at one of the IPSS participating sites.
• This registry will include children diagnosed with below stroke types:
• • Arterial Ischemic Stroke (AIS),
• • Cerebral Sinovenous Thrombosis (CSVT),
• • AIS and CSVT
• • Presume Preinatal Ischemic Stroke (PPIS)
• • Children diagnosed with hemorrhagic stroke
• Children at high risk of stroke include:
• • Those diagnosed with arteriopathy, arteritis/vasculitis, moyamoya, dissection, sickle cell related infarcts).
• • Brain arteriovenous malformations
• Exclusion Criteria:
• • Premature children diagnosed with AIS.
• • Premature children diagnosed with PPIS
• • Children diagnosed with TIA (Transient Ischemic Attack)
• • Brain hemorrhage secondary to trauma
• • Refusal to provide consent for participation