Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life

Launched by MEMORIAL SLOAN KETTERING CANCER CENTER · Mar 19, 2008

Keywords

ClinConnect Summary

The Retinoblastoma Survivor Study is looking to understand how surviving retinoblastoma, a type of eye cancer that usually affects children, impacts people's overall health and quality of life as adults. The study focuses on aspects like physical health, emotional well-being, and daily activities to see how these survivors feel about their lives. The goal is to gather valuable information that can help improve care for children diagnosed with retinoblastoma in the future, as well as offer better support for those who have survived it.

If you or someone you know was diagnosed with retinoblastoma at any age and has completed treatment at least five years ago, you may be eligible to participate in this study. Participants will have the chance to share their experiences and feelings about life after cancer, which could ultimately help others in similar situations. The study is open to all adults aged 65 to 74, and everyone who takes part will be asked to give their consent. This study is currently recruiting, so if you’re interested, it could be a great opportunity to contribute to important research!

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Patient diagnosed with retinoblastoma at any age
• • At least five years from completion of all retinoblastoma-directed therapy
• • Able to provide informed consent and/or assent, if indicated