National Lymphangioleiomyomatosis Registry, France

Launched by VINCENT COTTIN · Dec 1, 2011

Keywords

ClinConnect Summary

The National Lymphangioleiomyomatosis Registry (RE-LAM-CE) in France is a study that aims to gather information about lymphangioleiomyomatosis (LAM), a rare lung disease. The researchers want to find out how common this condition is in France and learn more about when and how patients are diagnosed. They will collect detailed medical information from patients to track how the disease affects lung function over time.

If you have been diagnosed with sporadic lymphangioleiomyomatosis or LAM associated with Tuberous sclerosis and have received care since January 1, 2008, you may be eligible to participate in this study. There are no specific exclusions, so most patients with these conditions can join. By participating, you'll help researchers gain valuable insights that could improve understanding and treatment of LAM. The study is currently recruiting participants, and it’s open to individuals of all ages and genders.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Patients with sporadic lymphangioleiomyomatosis or associated with Tuberous sclerosis.
• • patients diagnosed or hospitalized or seen in consultation since 01/01/2008
• Exclusion Criteria:
• • None