The Preeclampsia Registry

Launched by PREECLAMPSIA FOUNDATION · Dec 18, 2013

Keywords

ClinConnect Summary

The Preeclampsia Registry is a clinical study aiming to gather important information about preeclampsia and related high blood pressure disorders that can occur during pregnancy, such as eclampsia and HELLP syndrome. By collecting data from women diagnosed with these conditions, their family members, and women who have never experienced preeclampsia, researchers hope to better understand why these disorders happen, how to predict them, and to explore new treatment options.

To participate in the study, women who have been diagnosed with preeclampsia or related conditions are eligible, as well as their female or male relatives. Women who have never had preeclampsia but wish to contribute as control participants are also welcome. Participants will be asked to provide information through questionnaires, and if a woman has passed away or is unable to participate due to a disability, a family member can step in to help. This study is currently recruiting individuals and is open to people of all ages, but those who can't provide consent, are prisoners, or do not speak English cannot participate. Your involvement could play a crucial role in advancing research on preeclampsia and improving outcomes for future mothers.

Gender

All

Eligibility criteria

• Inclusion Criteria:
• • Women who were medically diagnosed with preeclampsia or a related hypertensive disorder of pregnancy (HDP) such as eclampsia or HELLP syndrome.
• • Female or Male relatives of affected women
• • Women who have never had preeclampsia or hypertensive disorders of pregnancy, but who would like to serve as "controls" in research studies of preeclampsia.
• • An authorized representative may complete the questionnaire and provide consent for a woman who had preeclampsia, but has died or is disabled as a result.
• Exclusion Criteria:
• • Those unable to provide consent
• • Prisoners
• • Individuals unable to speak English