Undifferentiated Connective Tissue Disease Registry

Launched by HOSPITAL FOR SPECIAL SURGERY, NEW YORK · Sep 4, 2014

Keywords

ClinConnect Summary

The Undifferentiated Connective Tissue Disease Registry is a research study aimed at helping doctors understand more about patients who have undifferentiated connective tissue disease. This condition can cause a variety of symptoms, such as joint pain, skin rashes, and tiredness, but it doesn't fit neatly into any specific disease category. The registry is currently looking for participants, and anyone between the ages of 65 and 74 who is being treated by a rheumatologist at HSS may qualify. To participate, patients should have certain positive blood test results and show at least one symptom related to connective tissue disease.

Participants in this study can expect to share information about their health and symptoms over time, which will help researchers learn how this condition affects people's lives both physically and emotionally. It’s important to know that this study is focused on patients who do not have well-defined connective tissue diseases like lupus or rheumatoid arthritis. If you or someone you know is interested in participating, please reach out to your healthcare provider for more information.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Any patient under the care of an HSS rheumatologist
• • Positive ANA or a positive anti-ds DNA, anti-Ro/SS-A or other autoantibody on 2 or more occasions at least 12 weeks apart
• • One or more signs or symptoms of connective tissue disease, including but not limited to arthralgia, arthritis, myalgia, rash, sicca symptoms, pericarditis, pleuritis, pulmonary symptoms, peripheral neuropathy, photosensitivity, alopecia, oral or nasal ulcers, leucopenia, anemia, and abnormal nailfold capillaroscopy
• Exclusion Criteria:
• • Patients who meet criteria for well defined CTD including SLE, rheumatoid arthritis, polymyositis or dermatomyositis, systemic sclerosis, or antiphospholipid syndrome
• • Patients who are less than 18
• • Those unable to give informed consent in English