Cerebellar Mutism Syndrome Study

Launched by RIGSHOSPITALET, DENMARK · Nov 24, 2014

Keywords

ClinConnect Summary

The Cerebellar Mutism Syndrome Study is looking into why some children develop a condition called Cerebellar Mutism Syndrome (CMS) after having surgery for brain tumors in the back part of the brain, known as the posterior fossa. This condition can affect their ability to speak and communicate. The study aims to understand how often this happens, what the typical recovery looks like, and the best ways to treat it.

To participate in the study, children must be under 18 years old and have a tumor located in the cerebellum, the fourth ventricle, or the brainstem. The study is open to all genders, and parents or guardians will need to give their consent for their child to join. If eligible, participants can expect to be part of a research team that will closely monitor their condition and treatment progress. The study is currently recruiting participants, and there are no specific exclusion criteria, making it accessible for many families dealing with this challenging situation.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Age \< 18 years at the date of first imaging showing this tumour
• • Tumour in the cerebellum/4th ventricle/brainstem with intention to treat with surgical resection or open biopsy. Second and further surgeries are also included.
• • Informed consent from custodial parent(s)
• Exclusion Criteria:
• • None