The EUROSCA Natural History Study

Launched by ATAXIA STUDY GROUP · May 7, 2015

Keywords

ClinConnect Summary

The EUROSCA Natural History Study is a clinical trial that aims to understand how certain types of Spinocerebellar Ataxia (SCA) progress over time. Specifically, it focuses on four types: SCA1, SCA2, SCA3, and SCA6. Researchers want to learn more about how quickly these conditions worsen and what other symptoms may appear that aren't related to coordination issues. They will also look at how these diseases affect everyday life and overall well-being, as well as identify factors that could predict how the disease will progress for individual patients.

To participate in this study, individuals must have progressive ataxia (a loss of coordination) that can't be explained by other causes and must have a positive genetic test confirming one of the SCA types mentioned. There are no specific exclusions, so many people could be eligible. If you join the study, you can expect to provide information about your symptoms and quality of life over time. This research is crucial for improving understanding and treatment options for those living with these conditions.

Gender

ALL

Eligibility criteria

• Inclusion criteria:
• • Progressive, otherwise unexplained ataxia
• • Positive genetic testing for SCA1, SCA2, SCA3, and SCA6
• • Written informed consent by the patient or his legal agent
• Exclusion criteria:
• • None.