Hairy Cell Leukemia Patient Data Registry

Launched by OHIO STATE UNIVERSITY COMPREHENSIVE CANCER CENTER · Sep 24, 2015

Keywords

ClinConnect Summary

The Hairy Cell Leukemia Patient Data Registry is a study aimed at gathering important information about hairy cell leukemia, a rare type of blood cancer that affects adults. With around 1,000 new cases diagnosed in the U.S. each year, this registry will help researchers better understand the disease, find out which treatments work best, identify any new complications, and design future clinical trials for new therapies. By collecting data from patients, the goal is to ultimately improve the quality of life for those living with this condition.

To participate in this study, patients must be adults diagnosed with either classic hairy cell leukemia or its variant. Unfortunately, children cannot participate since this disease typically doesn’t occur in younger individuals. Those who join the registry can expect to provide information about their health and experiences, which will be used to help advance research and improve care for future patients. This project is currently recruiting participants, and anyone interested should talk to their healthcare provider about eligibility and how they can get involved.

Gender

ALL

Eligibility criteria

• Inclusion:
• • Patients with classic hairy cell leukemia
• • Patients with the variant of hairy cell leukemia.
• Exclusion:
• • Children are excluded from the study, since Hairy Cell Leukemia wasn't described in children.