Vasculitis Pregnancy Registry

Launched by UNIVERSITY OF PENNSYLVANIA · Oct 29, 2015

Keywords

ClinConnect Summary

The Vasculitis Pregnancy Registry is a study aimed at understanding the experiences of women with various types of vasculitis who are pregnant. Vasculitis refers to a group of diseases that cause inflammation of the blood vessels, which can affect different parts of the body. In this study, researchers want to gather information through online surveys about how each woman's condition affects her pregnancy and what the outcomes of these pregnancies are. This information will help improve care and support for women with vasculitis during pregnancy.

To be eligible for this study, women must be 18 years or older, currently pregnant, and have a diagnosed condition from a specific list of vasculitis diseases. Participants will complete online surveys that ask about their health and pregnancy experiences. The study is open to women who speak English, Spanish, Portuguese, Italian, or Turkish. If you are eligible and choose to participate, your experiences could provide valuable insights for others in similar situations.

Gender

FEMALE

Eligibility criteria

• Inclusion Criteria:
• 1. Women 18 years of age or older with one of the following diseases may take part in the study:
• • Behçet's disease;
• • Central nervous system (CNS) vasculitis;
• • Cryoglobulinemic vasculitis (Cryoglobulinemia);
• • Eosinophilic granulomatosis with polyangiitis (also called Churg-Strauss Syndrome);
• • Giant Cell (Temporal) Arteritis (GCA);
• • Granulomatosis with polyangiitis (also called Wegener's);
• • IgA vasculitis (Henoch-Schoenlein purpura);
• • Microscopic polyangiitis (MPA);
• • Polyarteritis nodosa (PAN);
• • Takayasu's arteritis (TAK);
• • Urticarial vasculitis;
• • Other/Suspected Diagnosis.
• • 2. Women must be pregnant (self-report) at the time of enrollment into the registry.
• Exclusion Criteria:
• • 1. Non-English speaking, with the exception of people who speak Spanish, Portuguese, Italian, or Turkish.
• • 2. Unable to provide consent.