Italian Network MDS Registry
Launched by FONDAZIONE ITALIANA SINDROMI MIELODISPLASTICHE-ETS · Jun 17, 2016
Trial Information
Current as of June 27, 2025
Recruiting
Keywords
ClinConnect Summary
The Italian Network MDS Registry is a clinical trial that aims to gather important information about adult patients who have recently been diagnosed with myelodysplastic syndromes (MDS). MDS are a group of diseases that affect how blood cells are made in the bone marrow, leading to problems like anemia or increased risk of infections. This study is currently looking for participants, specifically adults aged between 65 and 74, who have just received their diagnosis of MDS.
To take part in this trial, patients need to be newly diagnosed with MDS and must agree to participate by signing an informed consent form. Those who do not wish to sign this consent will not be eligible. Participants will help researchers collect valuable data that can improve our understanding of MDS, and they may also benefit from being part of a larger community of patients facing similar challenges. Overall, this trial is an important step in learning more about MDS and potentially improving future treatments.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • New diagnosis of MDS
- Exclusion Criteria:
- • Patient who refuse the signature of informed consent
About Fondazione Italiana Sindromi Mielodisplastiche Ets
Fondazione Italiana Sindromi Mielodisplastiche-ETS is a prominent clinical trial sponsor dedicated to advancing research and treatment options for myelodysplastic syndromes (MDS). Established with a mission to enhance patient care through innovative research, the foundation collaborates with leading healthcare professionals and institutions to design and implement clinical studies that explore new therapeutic approaches. By fostering a multidisciplinary environment, the foundation aims to improve understanding of MDS, promote awareness, and ultimately contribute to better clinical outcomes for patients affected by these complex hematological disorders.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Padova, , Italy
Asti, , Italy
Chieri, , Italy
Perugia, , Italy
Torino, , Italy
Bari, , Italy
Bologna, , Italy
Cagliari, , Italy
Firenze, , Italy
Genova, , Italy
Orbassano, , Italy
Pesaro, , Italy
Tricase, , Italy
Alessandria, Al, Italy
Ancona, An, Italy
Genova, Ge, Italy
Parma, Pr, Italy
Rionero In Vulture, Pz, Italy
Torino, To, Italy
Candiolo, Torino, Italy
Patients applied
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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