International Registry for Patients With Castleman Disease

Launched by UNIVERSITY OF PENNSYLVANIA · Jun 24, 2016

Keywords

ClinConnect Summary

The International Registry for Patients With Castleman Disease is a study aimed at gathering important information about Castleman disease, a condition that affects the lymph nodes and immune system. The goal of this trial is to collect data from patients, including medical records and surveys, to help researchers better understand, diagnose, and treat this disease. This information will be crucial in improving care for individuals with Castleman disease in the future.

Anyone of any age who has a pathology report indicating Castleman disease may be eligible to participate, even if they have passed away, as long as the necessary medical documentation can be provided. Participants will need to give their consent electronically, following local guidelines. By joining this registry, patients can contribute to vital research that may lead to better treatments and outcomes for others facing this condition. There are no specific exclusions, so many individuals with Castleman disease can potentially take part in this important study.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Person of any age
• • Have a reference pathology report suggesting "Castleman disease" not limited to cutaneous involvement only that can be uploaded
• • Be able to provide electronic informed consent, as per local regulations
• • Deceased patients may also be enrolled when a reference pathology report suggesting "Castleman disease" can be supplied or when the ART is able to locate and upload such a pathology report.
• Exclusion Criteria:
• • Because this registry is designed to provide as wide a picture of routine clinical practice as possible, inclusion criteria are set deliberately wide and there are no exclusion criteria.