Clinical Presentation and Renal Outcome of Patients With Tuberous Sclerosis Complex and/or Renal Angiomyolipoma in the Great West Region of France
Launched by UNIVERSITY HOSPITAL, BREST · Aug 30, 2016
Trial Information
Current as of June 26, 2025
Recruiting
Keywords
ClinConnect Summary
This clinical trial is looking into how different factors, such as medical history, care received, and genetic information, affect kidney health in individuals with Tuberous Sclerosis Complex (TSC) or a related condition called renal angiomyolipoma. TSC is a genetic disorder that can cause various growths in different organs, including the kidneys. The study is currently recruiting participants of all ages who either have an isolated angiomyolipoma, have TSC with an angiomyolipoma, or have TSC alone.
If you or a family member are considering joining this study, you'll need to agree to participate, and you cannot have any objections to the study. Participants will help researchers understand how these conditions impact kidney function over time. By taking part, you may contribute to important findings that could improve care for others with TSC in the future.
Gender
ALL
Eligibility criteria
- • Inclusion criteria of study participants
- • Patient presenting with an isolated angiomyolipoma or
- • Patient presenting with tuberous sclerosis complex combined with an angiomyolipoma or
- • Patient presenting with tuberous sclerosis complex
- • Patient not objecting to the study
- • Exclusion criteria of study participants
- • ■Patient objecting to the study
About University Hospital, Brest
The University Hospital of Brest is a leading academic medical center dedicated to advancing healthcare through innovative clinical research and comprehensive patient care. With a strong emphasis on interdisciplinary collaboration, the hospital serves as a hub for cutting-edge clinical trials aimed at improving treatment outcomes across various medical specialties. Leveraging its robust academic affiliations and state-of-the-art facilities, the University Hospital of Brest is committed to fostering scientific discovery and enhancing the quality of life for patients through evidence-based practices and pioneering research initiatives.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Rennes, , France
Rennes, , France
Brest, , France
Patients applied
Trial Officials
Yannick LE MEUR, MD PhD
Study Director
University Hospital, Brest
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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