German Pediatric Hemophilia Research Database
Launched by GOETHE UNIVERSITY · Sep 20, 2016
Trial Information
Current as of July 05, 2025
Recruiting
Keywords
ClinConnect Summary
The German Pediatric Hemophilia Research Database is a study aimed at understanding how to better treat children with hemophilia A and B. Researchers will collect important information about the use of specific treatments (called factor concentrates), any complications that may arise, and how these conditions affect the children's daily lives and overall well-being. This study will help doctors improve care for kids who are newly diagnosed with hemophilia.
To be part of this study, children must be diagnosed with hemophilia A or B and have a specific level of factor proteins in their blood (FVIII/FIX levels between less than 1% to 25%). It's important that families provide informed consent, which means they understand the study and agree to participate. If you're considering enrolling your child, they will be closely monitored throughout the study, and their health and quality of life will be assessed regularly. This research could lead to better treatment options and support for children with hemophilia.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • hemophilia A or B
- • FVIII/FIX \<1% to 25%
- • informed consent
- Exclusion Criteria:
- • no consent
About Goethe University
Goethe University, located in Frankfurt, Germany, is a prestigious academic institution renowned for its commitment to research excellence and innovation in various fields, including medicine and health sciences. As a clinical trial sponsor, Goethe University leverages its robust interdisciplinary resources and expertise to advance medical research and improve patient outcomes. The university fosters collaboration among faculty, researchers, and healthcare professionals to design and conduct rigorous clinical trials, ensuring adherence to ethical standards and regulatory requirements. Through its dedication to scientific inquiry and public health, Goethe University plays a pivotal role in translating research findings into practical applications that benefit society.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Frankfurt, Hesse, Germany
Patients applied
Trial Officials
Christoph Königs, PhD
Principal Investigator
Goethe University
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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