The International Registry for Leigh Syndrome
Launched by THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER, HOUSTON · Apr 28, 2017
Trial Information
Current as of July 09, 2025
Recruiting
Keywords
ClinConnect Summary
The International Registry for Leigh Syndrome is a study aimed at gathering important information about Leigh syndrome, a rare genetic condition that affects the brain and muscles. The goal of this trial is to create a comprehensive database that will help researchers and doctors better understand this disease and its effects on patients. By collecting clinical and laboratory data, the study hopes to characterize Leigh syndrome more thoroughly, which may lead to improved treatments and care in the future.
Anyone diagnosed with Leigh syndrome is invited to participate in this study, regardless of their age or gender. If you or a loved one has this diagnosis, you may be eligible to join. Participants will help contribute to valuable research, and their information will be kept confidential. This is an important opportunity to advance our knowledge of Leigh syndrome, so if you qualify, consider being part of this meaningful effort.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • All participants with a diagnosis of Leigh syndrome will be invited to participate
- Exclusion Criteria:
- • People without Leigh syndrome
About The University Of Texas Health Science Center, Houston
The University of Texas Health Science Center at Houston (UTHealth) is a leading academic institution dedicated to advancing health through education, research, and clinical practice. As a prominent sponsor of clinical trials, UTHealth leverages its extensive resources and expertise in biomedical research to facilitate innovative studies aimed at improving patient outcomes. The institution is committed to fostering a collaborative environment that promotes scientific discovery and the translation of research findings into effective healthcare solutions, all while adhering to the highest ethical standards and regulatory guidelines. With a multidisciplinary approach, UTHealth plays a critical role in addressing complex health challenges and enhancing the quality of life in diverse communities.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Houston, Texas, United States
Patients applied
Trial Officials
Mary Kay Koenig, MD
Principal Investigator
The University of Texas Health Science Center, Houston
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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