EncoreAnywhere Use in Motor Neurone Disease

Launched by SHEFFIELD TEACHING HOSPITALS NHS FOUNDATION TRUST · May 12, 2017

Keywords

ClinConnect Summary

Non-invasive ventilation (NIV) use in patients with motor neurone disease (MND) who develop respiratory failure can improve symptoms and survival. Initiation of NIV can be difficult for patients and those who do not adequately adhere to the regime fail to gain benefit. This study will evaluate the use of EncoreAnywhere: a system which collects data on NIV use and effectiveness from the NIV machines and transmits it to the MND care team for review.

This study is a pilot, feasibility study. It is a randomised controlled trial comparing the use of EncoreAnywhere with usual care. Up to 40 pati...

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • 1. Patients with motor neuron disease diagnosed by a consultant neurologist.
• • 2. Receiving care from the Sheffield Teaching Hospitals NHS Trust MND clinic
• • 3. Respiratory failure diagnosed by the clinical team needing to start NIV
• • 4. Determined to be suitable for and willing to commence non-invasive ventilation including the EncoreAnywhere features as part of their usual care at the Royal Hallamshire Hospital MND clinic.
• Exclusion Criteria:
• • 1. Patients already established on non-invasive ventilation e.g. in obstructive sleep apnoea
• • 2. Those with no mobile internet reception in their homes (required to use EncoreAnywhere