UTHealth Turner Syndrome Research Registry
Launched by THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER, HOUSTON · Jun 9, 2017
Trial Information
Current as of June 26, 2025
Recruiting
Keywords
ClinConnect Summary
The UTHealth Turner Syndrome Research Registry is a clinical trial focused on understanding a specific heart condition called Bicuspid Aortic Valve (BAV) in women with Turner Syndrome (TS). The researchers aim to compare genetic information from TS patients who have BAV with those who do not. By doing this, they hope to find out what causes BAV in people with TS and to identify patterns of heart defects that may lead to complications in the future.
To participate in this study, you need to have a diagnosis of Turner Syndrome. Unfortunately, if you have been diagnosed with a condition other than Turner Syndrome, you won't be eligible. If you join the trial, you can expect to provide some genetic information and answer questions about your health, which will help the researchers learn more about the relationship between Turner Syndrome and heart issues. This important research could lead to better care and support for women with Turner Syndrome in the future.
Gender
FEMALE
Eligibility criteria
- Inclusion Criteria:
- • Diagnosis of Turner Syndrome
- Exclusion Criteria:
- • Diagnosis excluding Turner Syndrome
About The University Of Texas Health Science Center, Houston
The University of Texas Health Science Center at Houston (UTHealth) is a leading academic institution dedicated to advancing health through education, research, and clinical practice. As a prominent sponsor of clinical trials, UTHealth leverages its extensive resources and expertise in biomedical research to facilitate innovative studies aimed at improving patient outcomes. The institution is committed to fostering a collaborative environment that promotes scientific discovery and the translation of research findings into effective healthcare solutions, all while adhering to the highest ethical standards and regulatory guidelines. With a multidisciplinary approach, UTHealth plays a critical role in addressing complex health challenges and enhancing the quality of life in diverse communities.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Houston, Texas, United States
Patients applied
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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