Fibrous Dysplasia, McCune-Albright Syndrome Patient Registry

Launched by TOVAH BURSTEIN · Jul 24, 2017

Keywords

ClinConnect Summary

The Fibrous Dysplasia and McCune-Albright Syndrome (FD/MAS) Patient Registry is a research study designed to gather important information from patients and their families about living with these conditions. By completing simple questionnaires, participants can help researchers understand the challenges and experiences associated with fibrous dysplasia, McCune-Albright syndrome, and Mazabraud syndrome. This study is currently recruiting individuals of all ages and genders who have been clinically diagnosed with any of these conditions.

If you or a family member are eligible, you can join the registry and share your story to support valuable research. Participants can expect to fill out surveys that help shed light on their daily lives and health experiences. This information is crucial for improving care and treatment options in the future. To learn more, enroll, or complete your surveys, visit www.fdmasregistry.org. Your participation can make a difference!

Gender

ALL

Eligibility criteria

• Inclusion Criteria any one or more of the following:
• • clinical diagnosis of fibrous dysplasia
• • clinical diagnosis of McCune-Albright syndrome
• • clinical diagnosis of Mazabraud's syndrome