CAPRI National Juvenile Idiopathic Arthritis Registry

Launched by UNIVERSITY OF BRITISH COLUMBIA · Aug 9, 2017

Keywords

ClinConnect Summary

The CAPRI National Juvenile Idiopathic Arthritis (JIA) Registry is a research study that aims to gather important information about JIA, a condition that causes long-lasting inflammation in the joints of children. This registry is part of a larger effort by pediatric rheumatologists across Canada to understand how JIA affects kids over time and to improve treatment options. By collecting data from children diagnosed with JIA, the study hopes to learn more about the disease, how it progresses, and any potential side effects of treatments, ultimately helping doctors make better healthcare decisions.

To participate in this study, children must be newly diagnosed with JIA within the last three months or have previously taken part in related studies. The trial is open to all children, regardless of gender, and aims to include a wide age range. Families of eligible participants will be asked to fill out questionnaires in English or French to share their experiences. This research is ongoing, meaning that as new children are diagnosed, they can join the study, and their experiences will contribute valuable insights into managing JIA effectively.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • 1. All patients newly diagnosed with JIA within the last 3 months
• • 2. All patients who participated in the original ReACCh-Out study
• • 3. LEAP study patients from 'newly diagnosed' and 'ReACCh-Out' cohorts who have completed their two year follow up in LEAP
• Exclusion Criteria:
• • 1. Patients with an unconfirmed JIA diagnosis
• • 2. Patients diagnosed with JIA more than 3 months prior to the clinic visit, who were not followed in LEAP and /or ReACCh-Out studies.
• • 3. If the family as a whole is unable to answer questionnaires in English or French