Natural History of Wilson Disease
Launched by YALE UNIVERSITY · Nov 2, 2017
Trial Information
Current as of May 08, 2025
Recruiting
Keywords
ClinConnect Summary
The clinical trial titled "Natural History of Wilson Disease" is studying Wilson Disease (WD), a condition where the body has difficulty removing copper, leading to its buildup and potentially causing serious health issues. The main goal of this study is to gather important information and samples that will help researchers find the best ways to diagnose and monitor the treatment of WD in the future.
This study is currently recruiting participants of all ages who have been diagnosed with Wilson Disease. To take part, individuals must be able to give informed consent, meaning they understand the study and agree to participate. For those under 18, a parent or guardian must give permission, and, if appropriate, the child will also need to agree. Participants can expect to contribute to valuable research that may improve the understanding and treatment of Wilson Disease, helping future patients.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • Known diagnosis of WD
- • Able and willing to provide informed consent for adults (Parental/guardian permission (informed consent) and if appropriate, child assent for participants \<18 (or per local Institutional Review Board (IRB) regulation)
- Exclusion Criteria:
- • Diagnosis of WD has been excluded
- • Unwilling to provide informed consent or assent
About Yale University
Yale University, a prestigious Ivy League institution located in New Haven, Connecticut, is renowned for its commitment to advancing medical research and clinical innovation. With a rich history of academic excellence and a robust infrastructure for scientific inquiry, Yale serves as a leading sponsor for clinical trials aimed at improving patient care and developing new therapeutic approaches. The university's multidisciplinary teams of researchers and clinicians collaborate to conduct rigorous and ethical studies, leveraging cutting-edge technologies and methodologies to address critical health challenges. Through its dedication to fostering an environment of inquiry and discovery, Yale University plays a pivotal role in translating research findings into clinical practice, ultimately enhancing health outcomes for diverse populations.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Houston, Texas, United States
New Haven, Connecticut, United States
Seattle, Washington, United States
Heidelberg, , Germany
Orlando, Florida, United States
Guildford, Surrey, United Kingdom
Patients applied
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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