RegistRare: a Retro-prospective Registry of Rare Primary Headaches in Italian Tertiary Headache Centres

Launched by SILVIA BENEMEI · Jan 23, 2018

Keywords

ClinConnect Summary

The RegistRare trial is studying rare types of primary headaches, which are specific kinds of headaches that don’t occur because of another medical condition. This research is taking place in several specialized headache centers across Italy and is looking at how common these rare headaches are among patients over a three-year period. The study will collect information from patients who have already been diagnosed with these headaches (from May 2014 to April 2017) and will continue to gather new data each year after that.

If you or a loved one has been diagnosed with a rare primary headache and are interested in participating, you may be eligible to join this study. The main requirement is that you must have a confirmed diagnosis of one of these rare headaches and be willing to sign a consent form to participate. There are no specific exclusions, so almost anyone who meets the diagnosis criteria can join. Participants can expect to share their medical history and information about their headaches, which will help researchers better understand these conditions and improve care for others in the future.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • diagnosis of rare primary headaches (Part One, Chapter 3 and Chapter 4, ICHD-3 beta)
• • signed informed consent
• Exclusion Criteria:
• • none