International Primary Ciliary Dyskinesia Cohort
Launched by UNIVERSITY OF BERN · Apr 24, 2018
Trial Information
Current as of June 26, 2025
Recruiting
Keywords
ClinConnect Summary
The International Primary Ciliary Dyskinesia (PCD) Cohort is a study aimed at understanding a rare condition called primary ciliary dyskinesia, which affects the movement of tiny hair-like structures in the body that help keep our lungs and other organs healthy. This trial is gathering information from patients around the world to learn more about how the condition affects people, the severity of the disease, and how different treatments may help.
If you or someone you know has been diagnosed with primary ciliary dyskinesia, you may be eligible to participate in this study, which is open to everyone regardless of age or gender. Participants will be asked to share their medical history and undergo some clinical assessments. By joining this study, you can help researchers gain important insights that could improve care for others with this condition in the future.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • Patients diagnosed with primary ciliary dyskinesia
- Exclusion Criteria:
- • -
About University Of Bern
The University of Bern, a leading research institution in Switzerland, is dedicated to advancing medical knowledge and improving patient care through innovative clinical trials. With a strong emphasis on interdisciplinary collaboration and cutting-edge research, the university fosters an environment where scientific inquiry and clinical application intersect. Its commitment to ethical standards and patient safety ensures that all trials are conducted with the highest integrity, striving to contribute valuable insights to the global medical community. The University of Bern actively engages in diverse therapeutic areas, aiming to translate research findings into tangible health solutions.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Bern, , Switzerland
Patients applied
Trial Officials
Claudia E Kuehni, Prof
Principal Investigator
University of Bern
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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