Swiss Primary Ciliary Dyskinesia Registry
Launched by UNIVERSITY OF BERN · Jul 27, 2018
Trial Information
Current as of June 26, 2025
Recruiting
Keywords
ClinConnect Summary
The Swiss Primary Ciliary Dyskinesia (PCD) Registry is a study that aims to gather important information about patients with PCD, a condition that affects the tiny hair-like structures in the body that help clear mucus and keep the lungs healthy. By collecting details on diagnosis, symptoms, and treatments, this registry will help researchers monitor the condition and improve care for patients both in Switzerland and around the world.
If you or someone you know has been diagnosed with primary ciliary dyskinesia, you might be eligible to participate in this study. Participants will need to provide their consent to join. Those who take part can expect to share their health information, which will contribute to a better understanding of this condition and help develop better treatments in the future. The study is currently looking for patients of all ages and genders, so there are many opportunities for involvement.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • Patients diagnosed with primary ciliary dyskinesia
- • Signed informed consent or assent
- Exclusion Criteria:
- • -
About University Of Bern
The University of Bern, a leading research institution in Switzerland, is dedicated to advancing medical knowledge and improving patient care through innovative clinical trials. With a strong emphasis on interdisciplinary collaboration and cutting-edge research, the university fosters an environment where scientific inquiry and clinical application intersect. Its commitment to ethical standards and patient safety ensures that all trials are conducted with the highest integrity, striving to contribute valuable insights to the global medical community. The University of Bern actively engages in diverse therapeutic areas, aiming to translate research findings into tangible health solutions.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Bern, , Switzerland
Patients applied
Trial Officials
Claudia E Kuehni, Prof
Principal Investigator
University of Bern
Myrofora Goutaki, PD, MD-PhD
Principal Investigator
University of Bern
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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