PROOF-Registry New and Extended Belgium -Luxembourg

Launched by BELGIAN THORACIC SOCIETY · Nov 5, 2018

Keywords

ClinConnect Summary

Idiopathic pulmonary fibrosis (IPF) is a chronic disease of unknown etiology, characterized by scar tissue (fibrosis) within the lungs. IPF is one of the most common forms of interstitial lung disease and is associated with substantial morbidity and mortality (average survival of approximately three years from the time of diagnosis)).

The epidemiology and natural history of IPF is still not completely understood. Incidence and prevalence of IPF are difficult to determine because uniform diagnostic criteria have only recently been defined. Recent data among subjects aged 50 years or older s...

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Patients \>18 years of age
• • IPF diagnosis "definite" or "probable" (2011 ATS/ERS guidelines definitions) confirmed by a multidisciplinary team (= minimum of pulmonologist, radiologist, pathologist, all with expertise in IPF).
• • Patients who agreed to participate in the registry and have completed and signed the Informed Consent Form
• Exclusion Criteria:
• • Patients incapable of giving informed consent
• • Patients participating in a clinical trial at the time of inclusion in the registry and whose protocol does not allow participation in another trial