Parent and Infant Inter(X)Action Intervention (PIXI)

Launched by RTI INTERNATIONAL · Feb 7, 2019

Keywords

ClinConnect Summary

The primary goal of the proposed project is to develop and test, through an iterative process, an intervention to address and support the development of infants with a rare neurogenetic condition (e.g., fragile X, Angelman, Prader-Willi, Dup15q, Phelan-McDermid, Rhett, Smith Magenis, Williams, Turner, Kleinfelter, Down syndromes, Duchenne muscular dystrophy) identified prior to emergence of symptoms. PiXI aims to utilize the foundational knowledge available around the development of and early intervention for at-risk infants to both understand the needs of and provide intervention services ...

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Infants 15 months of age or younger who have received a diagnosis which was not sought solely due to parental concerns about the infant (e.g. diagnosis due to prenatal or newborn screening, cascade testing following diagnosis of a family member).
• • English must be the primary language spoken in the home because all assessment measures and intervention protocol are in English.
• Exclusion Criteria:
• • - Infants may not be blind or have a severe hearing impairment as the intervention and assessments are not appropriate for these children.