Children and Adults With Chordoma

Launched by NATIONAL CANCER INSTITUTE (NCI) · Apr 9, 2019

Keywords

ClinConnect Summary

This clinical trial is looking at chordoma, which is a rare type of bone cancer that usually develops in the skull or spine. The researchers want to learn more about how chordoma affects patients, how it shows up on medical scans, and how well different treatments work. By gathering this information, they hope to improve future treatment options and support for people living with this disease.

To participate in the study, individuals must be at least 2 years old and have a confirmed diagnosis of chordoma. Participants will undergo a series of tests, including physical and neurologic exams, as well as imaging scans like CT and MRI to take pictures of their body. They will also complete surveys to assess their emotional and physical well-being every 6 to 12 months. Additionally, the research team will keep in touch with participants and their doctors to gather updates on their health. This study is currently recruiting participants, and everyone, regardless of gender, is welcome to join.

Gender

ALL

Eligibility criteria

• * INCLUSION CRITERIA:
• • Ability of subject or Legally Authorized Representative (LAR) to understand and the willingness to sign a written consent document.
• • Subjects with radiographically or histologically documented chordoma
• • Age greater than or equal to 2 years old
• • Subjects must be enrolled into NCI protocol 19-C-0016: Natural History and Biospecimen Acquisition Study for Children and Adults with Rare Solid Tumors .
• EXCLUSION CRITERIA:
• • -None