Hidradenitis Suppurativa Prospective Observational Registry and Biospecimen Repository

Launched by UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · Oct 1, 2019

Keywords

ClinConnect Summary

This clinical trial is focused on understanding a skin condition called hidradenitis suppurativa (HS), which causes painful bumps and can greatly affect a person's quality of life. The study aims to gather detailed information about the symptoms and biological characteristics of HS to help create a better classification system and identify potential new treatments. Researchers are currently looking for participants of all genders, aged 10 years and older, who have been diagnosed with HS by a qualified medical professional.

If you or a loved one decides to join this study, you'll be asked to provide written consent and may need to complete some questionnaires and follow-ups. This research is important because it will help us learn more about HS, which is often misunderstood, and could lead to improved care for those living with this condition.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • 1. Male or female ≥ 10 years of age
• • 2. Diagnosis of HS by a dermatologist or practitioner experienced in making a diagnosis of HS
• • 3. Written informed consent (and assent when applicable) obtained from subject or subject's legal representative and ability for subject to comply with the requirements of the study.
• Exclusion Criteria:
• • 1. Inability to give informed consent or unavailability of a parent/guardian who is able and willing to give informed consent.