Multicenter Registry for Patients With Childhood.Onset Craniopharyngioma, Xanthogranuloma, Cysts of Rathke's Pouch, Meningioma, Pituitary Adenoma, Arachnoid Cysts

Launched by KLINIKUM OLDENBURG GGMBH · Nov 6, 2019

Keywords

ClinConnect Summary

The KRANIOPHARYNGEOM Registry 2019 is a clinical study that aims to gather important information about patients who have been diagnosed with craniopharyngioma, a type of brain tumor that starts in childhood. This registry will also include patients with other related conditions like xanthogranuloma, meningioma, and various types of cysts in the brain. The goal is to understand how these conditions are diagnosed, treated, and monitored over time. The study is currently looking for participants, and it welcomes individuals from as young as 1 year old up to 18 years old who have recently been diagnosed with craniopharyngioma.

To join the study, patients must have been diagnosed with craniopharyngioma for the first time and be 18 years of age or younger. Parents or guardians will need to give their permission, along with the patient's agreement. Participants can expect to provide information about their health and treatment, which will help doctors learn more about these conditions and improve care for future patients. This registry is a valuable opportunity for families to contribute to research that could lead to better understanding and management of these brain-related issues.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • 1. Diagnosed with craniopharyngioma for the first time
• • 2. Age at diagnosis 18 years or less of age
• • 3. Agreement from patient's parents or legal guardian as well as the patient
• Exclusion Criteria:
• • 1. Age at diagnosis over 18 years of age
• • 2. Diagnosis different from craniopharyngioma