Pregnancy in Women With Rare Multisystemic Vascular Diseases: COGRare5 Study

Launched by HOSPICES CIVILS DE LYON · Dec 9, 2019

Keywords

ClinConnect Summary

The COGRare5 Study is a research trial focused on understanding how rare vascular diseases can affect pregnancies. These conditions, such as Osler Rendu Disease and Marfan Syndrome, can lead to serious health issues for both mothers and their babies. The goal of this study is to learn more about potential pregnancy complications in women with these rare diseases so that doctors can improve care, reduce risks, and ultimately save lives.

To participate in this study, women between the ages of 18 and 45 who are currently pregnant or have given birth in the last month may be eligible. Participants will need to have a diagnosis of a rare vascular disease confirmed through medical tests. Those who join the study will help researchers gather important information that could lead to better guidelines for managing pregnancies in women with these conditions. It’s important to note that the study is actively recruiting participants, and women who meet the criteria are encouraged to consider joining.

Gender

FEMALE

Eligibility criteria

• Inclusion Criteria:
• • Women aged ≥ 18 years and ≤45 years at the time of inclusion
• • Pregnant and/or having given birth less than 1 month (≤ 30 days)
• • Clinically and/or radiological and/or molecular biology diagnosis of a rare vascular disease before or during pregnancy or one month after delivery.
• • Having been informed of all pertinent aspects of the study and provided oral non-opposition.
• Exclusion Criteria:
• • Any person not fulfilling the inclusion criteria or refusing to take part in the study.
• • Major under legal protection