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Search / Trial NCT04252001

Growing up With the Young Endocrine Support System (YESS!)

Launched by DR. LAURA C. G. DE GRAAFF-HERDER · Jan 30, 2020

Trial Information

Current as of July 22, 2025

Not yet recruiting

Keywords

Serious Game Endocrinology Transition

ClinConnect Summary

The YESS! trial is studying a new way to help teenagers with certain hormone-related conditions, like Turner Syndrome and Addison's Disease, successfully transition from pediatric (child) care to adult care. This transition can be difficult, and many young adults stop going to their medical appointments, which can lead to serious health issues. To help with this, researchers have created a fun game called the YESS! game. They believe that playing this game will help teenagers learn how to manage their health better and stay connected with their doctors during this important time.

To be eligible for the trial, participants need to be between 15 and 20 years old and have been diagnosed with one of the specific conditions mentioned. It's important that they have access to a mobile phone or tablet to use the YESS! game. Throughout the study, participants will play the game and share their experiences, which will help researchers understand if it really makes a difference in how well they manage their health and stay engaged with their healthcare providers. The trial is not yet recruiting participants, but it's an exciting opportunity for young people facing these challenges.

Gender

ALL

Eligibility criteria

  • Inclusion Criteria:
  • Aged 15 to 20 years old.
  • Diagnosed with congenital adrenal hyperplasia, hypogonadotropic hypogonadism, Turner syndrome, Klinefelter syndrome, growth hormone deficiency, combined pituitary hormone deficiency, Androgen insensitivity syndrome, thyroid dysgenesis or Addison's disease
  • Exclusion Criteria:
  • Lack of a mobile phone or tablet.
  • Intellectual disability or language barrier leading to inability to use the YESS! game or the control game.

About Dr. Laura C. G. De Graaff Herder

Dr. Laura C. G. de Graaff-Herder is a distinguished clinical trial sponsor known for her commitment to advancing medical research and improving patient outcomes. With a strong background in clinical medicine and a focus on innovative therapeutic approaches, Dr. de Graaff-Herder leads initiatives that prioritize rigorous study design and ethical conduct. Her collaborative approach fosters partnerships with academic institutions and industry stakeholders, ensuring that trials are not only scientifically robust but also aligned with the needs of diverse patient populations. Through her leadership, she aims to contribute significantly to the body of knowledge in her field, enhancing the effectiveness and accessibility of healthcare interventions.

Locations

Glasgow, , United Kingdom

Ghent, , Belgium

Madrid, , Spain

Glasgow, , United Kingdom

Rotterdam, South Holland, Netherlands

London, , United Kingdom

London, , United Kingdom

Patients applied

0 patients applied

Trial Officials

Laura CG de Graaff, MD PhD

Principal Investigator

Erasmus Medical Centre

Timeline

First submit

Trial launched

Trial updated

Estimated completion

Not reported

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