Aftercare of Childhood Cancer Survivors in Switzerland
Launched by KANTONSSPITAL AARAU · Feb 22, 2020
Trial Information
Current as of June 26, 2025
Recruiting
Keywords
ClinConnect Summary
The Aftercare of Childhood Cancer Survivors in Switzerland (ACCS) study is a research project aimed at understanding how young people who survived childhood cancer transition from pediatric (child) care to adult healthcare. This study wants to learn about the needs and preferences of these survivors regarding their follow-up care through questionnaires that will be filled out by adolescents and young adults who have overcome childhood cancer.
To be eligible for this study, participants must have survived childhood cancer for at least five years, have been diagnosed with specific types of cancer before turning 18 years old, and be aged 16 or older at the time of the study. They should also currently be receiving follow-up care at one of three pediatric oncology centers or have transitioned to adult care after 2014. Participants can expect to share their experiences and thoughts about their care, helping to improve the support offered to future survivors. It's important to note that those with severe cognitive impairments or who cannot speak German may not be able to participate.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • 5-year survivor of childhood cancer
- • Diagnosis according to ICCC3 I-XII; Langerhans cell histiocytosis (LCH), Hemophagocytic lymphohistiocytosis (HLH)
- • Age at diagnosis \<18 years
- • Age at study ≥16 years
- • At study start in follow-up care at one of the three pediatric oncology centers (group before transition) or transitioned not before 2014 (group after transition).
- • Written informed consent
- Exclusion Criteria:
- • Treatment only by means of surgery and without increased risk of late effects (e.g. teratoma)
- • \<5 years after therapy of a relapse or palliative situation
- • Severe cognitive impairment, which makes it impossible to complete the questionnaire independently
- • Insufficient knowledge of the German language
- • Informed consent form not signed
About Kantonsspital Aarau
Kantonsspital Aarau is a leading healthcare institution in Switzerland, renowned for its commitment to high-quality patient care and innovative medical research. As a prominent clinical trial sponsor, the hospital actively engages in advancing medical knowledge through rigorous clinical studies that adhere to ethical standards and regulatory guidelines. With a multidisciplinary team of experienced healthcare professionals and researchers, Kantonsspital Aarau fosters collaborative partnerships aimed at developing new therapeutic interventions and improving health outcomes. The institution is dedicated to enhancing clinical practice through evidence-based research, thereby contributing to the advancement of medical science and patient care.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Aarau, , Switzerland
Basel, , Switzerland
Lucerne, , Switzerland
Patients applied
Trial Officials
Katrin Scheinemann, MD
Principal Investigator
Kantonsspital Aarau
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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