Canadian Adult Congenital Heart Disease Intervention Registry

Launched by UNIVERSITY HEALTH NETWORK, TORONTO · Feb 27, 2020

Keywords

ClinConnect Summary

The Canadian Adult Congenital Heart Disease Intervention Registry is a study aimed at understanding how to improve care for adults with specific heart conditions. These conditions include atrial septal defect, patent foramen ovale, tetralogy of Fallot, Fontan, coarctation of the aorta, and transposition of the great vessels. By collecting information from patients and their healthcare providers, the registry will help researchers learn more about what treatments work best and how care can be improved for these patients across Canada.

To participate in this study, individuals must be 18 years or older and need to be referred for treatment related to one of the specified heart conditions. Unfortunately, people under 18 or those who live outside Canada cannot join the study. As the study is not yet recruiting participants, those interested will need to wait for the official start. Once involved, participants can expect to share their medical experiences and outcomes, which will contribute to a better understanding of adult congenital heart disease care in the future.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • participants must be 18 years or older referred for intervention for one of five ACHD conditions including diagnostic catheterization for complex ACHD patients (Tetralogy of Fallot, Fontan, and transposition of the great vessels, single ventricle, truncus arteriosus); transcatheter closure of atrial septal defects; transcatheter closure of patent foramen ovale; coarctation of aorta stenting, and percutaneous pulmonary valve implantation.
• Exclusion Criteria:
• • participants below the age of 18
• • participants residing outside of Canada