Telehealth Visits to Discuss Advanced Directives for Patients Newly Diagnosed With High Grade Glioma

Launched by UNIVERSITY OF ROCHESTER · Sep 8, 2020

Keywords

ClinConnect Summary

This clinical trial is focused on helping patients who have recently been diagnosed with high-grade gliomas, which are aggressive brain tumors. The goal is to facilitate important discussions about end-of-life wishes through telehealth visits, which means patients can connect with their healthcare providers via video or phone. These visits aim to ensure that patients, who may have difficulties making decisions due to changes in their thinking, can express their preferences for future care. Family members or caregivers are encouraged to join these conversations, making it a supportive environment for everyone involved.

To be eligible for this trial, participants must have a new diagnosis of a specific type of glioma within the last four months and be able to speak English. Those with severe cognitive difficulties that would prevent meaningful discussions about their care are not eligible. Throughout the trial, patients and their families will complete surveys to help improve the process for future patients. Researchers will track how well the patient's end-of-life care aligns with their wishes, comparing these outcomes to other patients at the center. This study aims to make sure that patients receive the care they want, even as their health changes.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • New pathologic diagnosis of WHO grade III or IV glioma within four months of consent
• • English speaking
• Exclusion Criteria:
• • Severe cognitive dysfunction or aphasia precluding discussion of advanced care planning issues