Social & Contextual Impact on Children Undergoing Liver Transplantation

Launched by UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · Sep 10, 2020

Keywords

ClinConnect Summary

This clinical trial is studying how social factors, like income and support systems, affect children undergoing liver transplantation. Researchers want to understand how these factors can influence health outcomes, such as how well the transplant works and how well families follow medical advice after the surgery. To do this, caregivers of children being transplanted will fill out surveys and participate in interviews. These surveys will collect information about their financial situation, access to healthcare, and social connections. The interviews will help identify any challenges these families face and explore ways to improve support for them.

To be part of this study, caregivers must have a child under 18 who is scheduled for a liver transplant and must agree to participate. Families will be excluded if they cannot complete the survey, if the child is in foster care, or if they don't speak English or Spanish. Health care providers involved in the care of these children will also be interviewed to better understand barriers they face in addressing social needs. Overall, this study aims to find ways to improve care for children undergoing liver transplantation by considering their social circumstances.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• Caregivers/parents of children with the following criteria will be approached for inclusion in this study:
• • Children \<18 years of age at the time of transplant
• • Undergoing liver transplantation
• • Guardian's consent, child assent (in accordance with each institution's IRB policies)
• • Consents to enrollment in SPLIT
• Exclusion Criteria:
• Caregivers/parents of children undergoing liver transplantation will be excluded it:
• • Caregiver unwilling or unable to complete the survey
• • Child is a ward of the state (e.g., foster care) since present circumstances may not be reflective of child's past or future circumstances
• • Non-English, non-Spanish speakers
• • Non-US residents
• • Declined participation in SPLIT
• Inclusion Criteria for Interview Portion of the Study:
• • Participants who have completed the questionnaire OR
• • Medical team member involved in the care of children undergoing liver transplant (e.g., physician, nurse, social worker)