COVID-19 in People With Primary Ciliary Dyskinesia

Launched by UNIVERSITY OF BERN · Oct 23, 2020

Keywords

ClinConnect Summary

The COVID-PCD study is a research project designed to understand how COVID-19 impacts people with a condition called Primary Ciliary Dyskinesia (PCD), which affects the tiny hair-like structures in the lungs and other parts of the body that help clear mucus and dirt. The study is open to anyone of any age who has been diagnosed with or suspected to have PCD. If you agree to participate, you'll start by filling out an online questionnaire about your health and any experiences you've had with COVID-19. After that, you’ll receive a short follow-up questionnaire each week, which will ask about any new COVID-19 infections, your current symptoms, how much physical activity you’re doing, and how much social contact you have.

By participating in this study, you will help researchers learn more about how COVID-19 affects those with PCD, which could lead to better care and support for patients in the future. The study is being conducted at the University of Bern, and recruitment began on May 30, 2020. It's important to note that you need to have a confirmed or suspected diagnosis of PCD to join, as those without this condition cannot participate.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • People of any age with reported suspected or confirmed Primary Ciliary Dyskinesia who gave consent to participate in the study
• Exclusion Criteria:
• • People who report not to have suspected or confirmed Primary Ciliary Dyskinesia