The Ear-Nose-Throat (ENT) Prospective International Cohort of PCD Patients (EPIC-PCD)
Launched by UNIVERSITY OF BERN · Oct 26, 2020
Trial Information
Current as of June 26, 2025
Recruiting
Keywords
ClinConnect Summary
The EPIC-PCD study is a research project focusing on patients with Primary Ciliary Dyskinesia (PCD) and Kartagener Syndrome, which are conditions that affect the tiny hairs in the body that help move mucus and keep the airways clear. This study is designed to gather information from patients across different countries while they continue to receive their usual medical care. The goal is to learn more about these conditions and how best to manage them over time.
To participate in this study, patients need to have a confirmed diagnosis of PCD and should be undergoing an ear, nose, and throat (ENT) examination at least once a year as part of their regular check-ups. There are no specific exclusions, meaning that most patients with PCD can join. By participating, individuals will be contributing to important research that aims to improve understanding and treatment of these conditions, while still being cared for according to local medical practices.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • Diagnosis of PCD (clinical and test certified)
- • Patient must undergo an ENT examination minimum once a year as part of their clinical follow-up
- Exclusion Criteria:
- • None
About University Of Bern
The University of Bern, a leading research institution in Switzerland, is dedicated to advancing medical knowledge and improving patient care through innovative clinical trials. With a strong emphasis on interdisciplinary collaboration and cutting-edge research, the university fosters an environment where scientific inquiry and clinical application intersect. Its commitment to ethical standards and patient safety ensures that all trials are conducted with the highest integrity, striving to contribute valuable insights to the global medical community. The University of Bern actively engages in diverse therapeutic areas, aiming to translate research findings into tangible health solutions.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Bern, , Switzerland
Patients applied
Trial Officials
Myrofora Goutaki, MD-PhD
Principal Investigator
University of Bern
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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