Unhide® Project: A Digital Health Platform to Collect Lifestyle Data for Brain Inflammation Research

Launched by BRAIN INFLAMMATION COLLABORATIVE · Mar 17, 2021

Keywords

ClinConnect Summary

The "Solve Together" clinical trial is focused on understanding health conditions like Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long Covid, which can occur after infections like COVID-19. This study is using a special data collection platform to gather information about patients' health. This information will help researchers identify the causes of these conditions and potentially find new treatments. Anyone who has ME/CFS, Long Covid, or even those who don’t have these conditions can participate, making it a great opportunity to contribute to important research.

Participants in this trial can expect to report their symptoms and health patterns, which can help their doctors understand their conditions better. The platform may also allow patients to connect their medical records and health-tracking devices, making it easier to share relevant health information. If you choose to join, you'll be helping researchers learn more about these chronic diseases and how to improve care for patients in the future.

Gender

ALL

Eligibility criteria

• Participants may be either self-diagnosed, or diagnosed by a physician with the following conditions:
• • Infection-associated chronic conditions such as Long COVID, chronic Lyme, myalgic encephalomyelitis (ME/CFS), and post-acute neuropsychiatric syndrome (PANS/PANDAS).
• • Neuroimmune, developmental, autonomic, and neurological conditions like migraines, dysautonomia, POTS, multiple sclerosis, and autism spectrum disorder.
• • Autoimmune diseases such as Lupus, Sjogren's Disease, rheumatoid arthritis, myasthenia gravis, ankylosing spondylitis, and related autoimmune conditions.
• • Inflammatory gastrointestinal conditions such as Crohn's Disease, Celiac Disease, and ulcerative colitis.
• • Behavioral and mood disorders such as anxiety, depression, bipolar disorder, PTSD, eating disorders, OCD, and other related conditions.
• • "Healthy" people (without brain inflammation), including unaffected individuals, unaffected individuals in the same household, and unaffected individuals who are married to relatives and family members.
• • Have consistent internet access and a cell phone, tablet, or PC since this is an online or app-based platform that requires entering data and completing surveys.
• • Currently live in the United States
• • Be able to participate in English (stay tuned for updates about the Spanish language version)
• • Be willing to share symptom and health data through the platform