Pulmonary Hypertension Biorepository and Registry
Launched by UNIVERSITY OF KANSAS MEDICAL CENTER · Mar 17, 2021
Trial Information
Current as of July 22, 2025
Recruiting
Keywords
ClinConnect Summary
The Pulmonary Hypertension Biorepository and Registry trial is focused on understanding various types of pulmonary hypertension, a condition that affects the blood vessels in the lungs and can lead to serious health issues. This study aims to collect information and biological samples from patients with pulmonary hypertension to help researchers learn more about the disease and improve treatment options.
To be eligible for this trial, participants need to be at least 18 years old and have a confirmed diagnosis of pulmonary hypertension, which is usually confirmed through a specific test called right heart catheterization. The study is open to anyone, regardless of gender, who is a patient at TUKHS or has agreed to take part in an approved study. If someone decides they do not want to participate or cannot provide consent, they will not be included. Participants can expect to contribute to important research that could lead to better understanding and management of pulmonary hypertension.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • 1. The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP)
- • 2. The participant has a diagnosis of pulmonary hypertension confirmed by right heart catheterization
- • 3. Patient is ≥ 18 years of age or older
- Exclusion Criteria:
- • 1. Participant declines to participate (living patients only)
- • 2. Participant is unable to provide informed consent (living patients only)
About University Of Kansas Medical Center
The University of Kansas Medical Center (KUMC) is a leading academic medical institution dedicated to advancing healthcare through innovative research, education, and clinical practice. As a prominent clinical trial sponsor, KUMC leverages its extensive expertise in diverse medical fields to conduct rigorous clinical research aimed at improving patient outcomes and developing new treatment modalities. With a commitment to ethical standards and patient safety, KUMC collaborates with multidisciplinary teams to facilitate groundbreaking studies that address significant health challenges, ultimately contributing to the advancement of medical knowledge and the enhancement of community health.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Kansas City, Kansas, United States
Kansas City, Kansas, United States
Patients applied
Trial Officials
Leslie A Spikes, MD
Principal Investigator
Assistant Professor of Medicine
Luigi R Boccardi, MPH
Study Director
Director of Pulmonary Research
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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