Persons With Dementia and Their Extended Family Caregivers

Launched by KAREN ROBERTO · Apr 24, 2021

Keywords

ClinConnect Summary

This clinical trial is focused on understanding the experiences of extended family members who care for loved ones living with dementia. As many families are now sharing caregiving responsibilities, the study aims to explore how these caregivers manage their roles, what support services they use, and any challenges they face. By talking to caregivers, researchers hope to find ways to improve support services and reduce stress for both caregivers and the individuals they care for.

To participate in this study, you should be at least 18 years old and live in Virginia, North Carolina, Maryland, West Virginia, Tennessee, Kentucky, or Washington, D.C. You need to be an extended family member, like a grandchild, sibling, or niece/nephew, who provides care for someone with dementia at least three days a week. Participants will first have a phone interview lasting about 70 minutes, followed by daily check-ins for eight days to discuss caregiving experiences. This research will help create better resources for families dealing with dementia.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Speaks/reads English
• • Resident of Virginia, North Carolina, Maryland, West Virginia, Tennessee, Kentucky or Washington, D.C.
• • Age 18+
• • Is either the grandchild, sibling, niece/nephew, step-kin, adult child or spouse of the person living with dementia
• • Is providing hands-on care and/or overall management of care for a person living with dementia in the community
• • Caregiver co-resides with the person with dementia or has face-to-face contact with the person with dementia at least 3 days/week
• • Has no difficulty talking/hearing on the telephone
• Exclusion Criteria:
• • Caregiver of persons with mild cognitive impairment
• • Person with dementia lives in service-enriched housing such as a continuing care community, or residential facilities, such as assisted living facilities or nursing homes