Biological Collection for Marfan and Related Syndromes

Launched by UNIVERSITY HOSPITAL, TOULOUSE · Jul 20, 2021

Keywords

ClinConnect Summary

This clinical trial, titled "Biological Collection for Marfan and Related Syndromes," is focused on gathering biological samples from individuals with Marfan syndrome and similar conditions. The goal is to use these samples for research to better understand these syndromes while ensuring that the privacy of all participants is respected. The study is currently looking for participants of all ages, from children as young as 3 years old to adults.

To be eligible for this study, participants must have Marfan syndrome or a related syndrome and need to be able to understand the information about the study, which is provided in French. Participants or their legal guardians must also give their consent to take part. However, individuals under legal protection, as well as pregnant or breastfeeding women, are excluded from participation. If you join this study, you can expect to contribute to research that may help improve the understanding of Marfan syndrome and related conditions, potentially benefiting future patients.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Children aged at least 3 years old or adult with Marfan syndrome or related syndromes
• • Patients affiliated to or beneficiaries of a social security scheme
• • Patients able to receive information on the progress of the study and understand the information form to participate in the study. That implies to master the French language and not to be subject to a restriction of rights by the judicial authorities
• • Patients or legal representative who have given their consent to participate in the study (expression of no objection)
• Exclusion Criteria:
• • Patients subject to a legal protection measure (guardianship, curators, or safeguard of justice)
• • Pregnant or breastfeeding women