De-identified UNMH EEG Corpus Database Creation With Fully De-identified Clinical Information

Launched by UNIVERSITY OF NEW MEXICO · Nov 17, 2021

Keywords

ClinConnect Summary

This clinical trial is focused on creating a unique database that combines EEG recordings (which measure electrical activity in the brain) with medical records for patients who have epilepsy, seizures, or related conditions. By gathering this information, researchers aim to better understand how brain activity before and after treatment affects a patient's outcome. This will help improve the way seizures are monitored and may lead to new treatments that can prevent seizures before they happen.

To be eligible for this trial, you need to be at least 18 years old and have a history of seizures or epilepsy. However, children under 18 cannot participate. If you join the study, your EEG data and medical records will be kept private and will not include any personal identifying information. The trial is currently recruiting participants, and it involves reviewing your EEG studies and medical history to gather important information that could help improve seizure management in the future.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • We will screen with UNMH EEG database, Nihon Kohden Neuroworkbench first. After meeting all the inclusion and exclusion criteria, we will access the Cerner Powerchart (UNMH EMR) for the rest of the clinical information.
• • 18 years old or older. If the patient's age is over 89, we will aggregated them to age 90 or older so that the patient cannot be identified. Also, all the EEG data will be de-identified and only show the year of the study performed instead of the exact study date to reduce the risk of identification. Of note, we perform over few thousands of EEG studies per year and it will be almost impossible to identify the patient based on the study year.
• Exclusion Criteria:
• • Children under age of 18 years old will be excluded.
• • Mismatched patients between EEG database and EMR