China National Registry of Neuro-Inflammatory Diseases

Launched by BEIJING TIANTAN HOSPITAL · Nov 29, 2021

Keywords

ClinConnect Summary

The China National Registry of Neuro-Inflammatory Diseases trial is studying various autoimmune diseases that affect the brain and spinal cord, such as Multiple Sclerosis (MS) and Neuromyelitis Optica Spectrum Disorder (NMOSD). The goal of this study is to create a comprehensive database that collects detailed information about patients with these conditions. This will help researchers understand how these diseases progress over time, how they affect patients' lives, and what treatments work best. By tracking this information, the study aims to find ways to predict disease progression and improve patient care.

Anyone diagnosed with one of the studied conditions, regardless of age or gender, may be eligible to participate. Participants will need to sign a consent form agreeing to be part of the study. Those with severe mental health issues that prevent them from cooperating or who are unable to sign the consent form will not be included. If you join the study, you can expect to share information about your health and treatment, which will contribute to a better understanding of these diseases and potentially help others in the future.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • 1. No requirement for age and sex
• • 2. Need to meet the diagnosis of at least one IDD (clinically isolated syndrome (CIS)/multiple sclerosis (MS)/neuromyelitis optica spectrum disorder (NMOSD)/MOG antibody-associated disease (MOGAD)/acute disseminated encephalomyelitis (ADEM).
• • 3. Signed informed consent form.
• Exclusion Criteria:
• • Those with severe mental disease unable to cooperate with the examination and/or follow-up.
• • Any patient (or the patient's legal representative) who is unable or refuses to sign informed consent.