Building Resiliency in Dyads of Patients With an ANI Admitted to the Neuro-ICU and Their Informal Caregivers

Launched by MASSACHUSETTS GENERAL HOSPITAL · Dec 1, 2021

Keywords

ClinConnect Summary

This clinical trial is designed to help patients with acute brain injuries and their caregivers by testing a program that aims to reduce emotional distress. The study involves a series of six sessions where both the patient and their caregiver participate together. The goal is to support these "dyads" (the patient and caregiver) during their stay in the Neuro-Intensive Care Unit (NICU) and help them cope better, which may lead to improved recovery and a better overall quality of life.

To take part in this trial, participants should be at least 18 years old, speak and read English, and have a caregiver who is willing to join. Patients must be currently hospitalized for an acute neurological injury (like a stroke or severe head injury) and show signs of emotional distress. However, individuals with certain conditions, like severe cognitive impairments or untreated mental health issues, may not be eligible. If you or a loved one is interested in participating, you can expect to engage in supportive sessions that focus on building resilience and coping strategies during a challenging time.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Age 18 or older
• • English fluency and literacy
• • Patient with an informal caregiver available and willing to participate
• • Hospitalized with any ANI within 6 weeks (patient) OR informal caregiver of a patient currently admitted with any ANI
• • Patient and/or caregiver exhibit emotional distress on screening (using HADS D and/or HADS A scores \> 7)
• Exclusion Criteria:
• • Permanent cognitive impairment (including severe hearing impairment) or aphasia that makes participation impossible
• • Short form of Mini-Mental State Exam (SMMSE) score \<4 (If SMMSE \<4, nursing team decides whether or not the patient can meaningfully participate)
• • Glasgow Coma Scale (GCS) score \<10
• • Terminal diagnosis
• • Lack of access to internet and/or a device with a camera
• • Current untreated or unstable severe mental health conditions like bipolar disorder, schizophrenia, or active substance use