Chronic Pain and Hemophilia

Launched by UNIVERSITY HOSPITAL, CLERMONT-FERRAND · Jan 10, 2022

Keywords

ClinConnect Summary

This clinical trial is focused on understanding chronic pain in people with hemophilia, a genetic condition that affects blood clotting. Although treatments exist to help manage bleeding episodes, many patients still experience long-lasting pain, particularly in their joints and muscles. The study aims to find out how common this pain is, what causes it, and how it affects people with hemophilia of all levels of severity. By gathering this information, the researchers hope to improve pain management strategies and raise awareness among doctors about how to treat pain in these patients.

To participate in the trial, you need to be at least 18 years old and have hemophilia or be a carrier with low factor levels. The study is open to all genders. Participants will complete a survey that asks about their pain experiences. If you are selected, you can expect to share your insights, which will contribute to a better understanding of chronic pain in hemophilia. It's important to note that individuals with certain cognitive disorders or those who have difficulty understanding French may not be eligible to participate.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Patient with haemophilia of any severity,
• • Carrier female with low levels haemophilia (\< 40%),
• • ≥ 18 years of age and capable of giving informed consent to participate in research.
• Exclusion Criteria:
• • Patient's refusal to participate in the survey,
• • Patient does not understand enough French (written and spoken) to complete the survey,
• • Patient unable to complete the survey for logistical reasons (lack of internet access),
• • Patient under protective measures (guardianship),
• • Patients with known addictive comorbidities and/or cognitive disorders.