Patient-reported Outcomes in Neuroendocrine Neoplasms: a Prospective Quality of Life and Quality of Care Study Within NETwerk

Launched by UNIVERSITY HOSPITAL, ANTWERP · Feb 24, 2022

Keywords

ClinConnect Summary

This clinical trial is focused on understanding the quality of life for patients with neuroendocrine tumors (NETs). NETs are rare types of tumors that need special attention and treatment. To provide better care for these patients, a group of hospitals has come together to form a network called NETwerk. This study aims to gather information on how patients feel throughout their diagnosis, treatment, and follow-up care by asking them to fill out questionnaires about their health and satisfaction with the care they receive. Patients will complete these questionnaires every six months for five years to help improve the overall care for those with NETs.

To participate in this study, individuals must be at least 18 years old, diagnosed with a neuroendocrine tumor, and registered in a specific patient database called Oncobase. Unfortunately, patients without an email address cannot join the trial. If eligible, participants can expect to share their experiences and feelings about their health regularly, which will contribute to enhancing the quality of care for future NET patients.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • NEN patient
• • 18 years or older
• • Patient should appear in Oncobase
• Exclusion Criteria:
• • Patients who do not have an email address